Hlaupastyrkur
Charity
Thordis‘ CMT4A Research Trust Fund
Total collected
850,000 kr.
Pledge count
56
The purpose of Thordis‘ CMT4A Research Trust Fund to support research and the development of a cure for CMT4A and to support Thordis, who has been diagnosed with CMT4A. Charcot-Marie-Tooth (CMT) is a group of inherited disorders of the peripheral nervous system. Thordis is a 15 year old girl who has been diagnosed with a rare and severe subtype called CMT4A which is caused by a mutation in the GDAP1 gene and leads to progressive nerve damage and loss of muscle tissue. It can also cause vocal cord and diaphragm paresis. Many patients are wheelchair dependent by the end of the first decade of life.
Participant that support this charity
Thordis‘ CMT4A Research Trust Fund
707% of goal
Thordis‘ CMT4A Research Trust Fund
21% of goal
New pledges
Pledge history
Rúna Hauksdóttir
Amount2,000 kr.
Bergdís
Amount5,000 kr.
Maggi
Amount5,000 kr.
Tengdó
Amount10,000 kr.
Eiríkur
Amount5,000 kr.
Rafnar
Amount10,000 kr.
Unnur
Amount5,000 kr.
Inga Brá
Amount5,000 kr.
Mamma
Amount5,000 kr.
Rannveig Óladóttir
Amount5,000 kr.
Snjólaug
Amount5,000 kr.
Ragnar Kristinsson
Amount2,000 kr.
Jóhanna
Amount3,000 kr.
Amount2,000 kr.
Amount5,000 kr.
Amount5,000 kr.
Amount5,000 kr.
Amount500,000 kr.
Amount1,000 kr.
Amount5,000 kr.
Amount5,000 kr.
Amount1,000 kr.
Sigrún Stefanía
Amount2,000 kr.
Lilja, Arnar og Þórey
Amount5,000 kr.
Jón K
Amount2,000 kr.
Þórey, Arnar og Lilja
Amount5,000 kr.
Ásthildur
Amount2,000 kr.
Amount3,000 kr.
Sigurjóna frænka
Amount5,000 kr.
Sigriður Dóra Magnusdóttir
Amount2,000 kr.
Ásta
Amount2,000 kr.
Hjallalandsgengið 😊
Amount5,000 kr.
Hrabbý sys
Amount5,000 kr.
Malla og Geiri
Amount20,000 kr.
Amount2,000 kr.
Bjarni Guðjón Samúelsson I
Amount25,000 kr.
HB
Amount1,000 kr.
Ragnheidur Sigurđardóttir
Amount5,000 kr.
Helga
Amount3,000 kr.
Nanna og Þórólfur
Amount25,000 kr.
Svenni
Amount30,000 kr.
Hulda Viktorsdóttir
Amount5,000 kr.
Amount5,000 kr.
Elva Rósa
Amount10,000 kr.
Ásta og Eiríkur
Amount2,000 kr.
Inga Brá
Amount5,000 kr.
Valgerður Anna Hannesdóttir
Amount1,000 kr.
Amount50,000 kr.
Rannveig
Amount2,000 kr.
Dagný Björnsdóttir
Amount5,000 kr.
Ásgerður
Amount1,000 kr.
Petur Alan Gudmundsson
Amount5,000 kr.
Birna Ýr
Amount2,000 kr.
Svenni
Amount5,000 kr.
Bryndis Magnusdottir
Amount2,000 kr.
Guðrún Ingibjörg
Amount5,000 kr.