Mikael Smári is an 11-year-old charmer who suffers from the neurodegenerative disease ataxia telangiectasia. The disease affects, among other things, the nervous and immune systems, and leads to a serious impairment of skills. Today, Mikael has difficulty with most movements, is dependent on various aids, including a wheelchair, and a stomach tube, as he finds it difficult to feed himself enough.

Mikki's health has gone back quite a bit lately, he gets tired very quickly and therefore rarely participates in school or plays with his peers.

Life expectancy is not high for children who are diagnosed with the disease, and the most important thing right now is to give them the best possible life, make memories and let them enjoy themselves.

The fund has supported Mikka's family with payments for a wheelchair car they have at their disposal, grants for travel and other expenses that have to be covered due to the obstacles they are facing.