Einstök börn Stuðningsfélag

Total collected

227,000 kr.

Pledge count

48

Einstök börn (Unique children) is a support group in Iceland for children with rare diseases.  The group was established in March 1997 by the parents of 13 children who had no other support group to go to.  Today there are more than 900  families in the group.


The Icelandic population is small so most of the children suffering from rare diseases are isolated, with mostly one or two children suffering from each disease.


Since most of the children in Einstök börn spend long periods of time in hospitals, one of the group's main concerns is to establish a good prosperous relationship between parents and healthcare professionals to make them aware of our unique needs within the healthcare system.


Our future goals are to keep strengthening the group from within and making rare disorders more known in our society than it is today. To make sure that people have access to understandable information about their diseases.  We also want to make sure that in Iceland there will be a place that collects information on rare diseases and gives us a chance to participate in gathering and sharing information within Europe and the world.


https://www.einstokborn.is/is/english

Participant that support this charity

Runner
10 K - Regular registration

Kolbrún Ada Gunnarsdóttir

Has collected 35,000 kr. for
Einstök börn Stuðningsfélag
10% of goal
Runner
21,1 km - Regular registration

Telma Dögg Ólafsdóttir

Has collected 5,000 kr. for
Einstök börn Stuðningsfélag
10% of goal
Runner
Marathon - Regular registration

Viktor Aron Bragason

Has collected 134,000 kr. for
Einstök börn Stuðningsfélag
27% of goal
Runner
10 K - Regular registration

Sólrún Ósk Snæfeld Helgadóttir

Has collected 35,000 kr. for
Einstök börn Stuðningsfélag
35% of goal

New pledges

Pledge history

Aron Lúkas
Amount5,000 kr.
❤️❤️❤️
Ísak Már Aðalsteinsson
Amount2,000 kr.
No message
Ragnar Jóhannesson
Amount10,000 kr.
Do or do not, there is no try.
H. Atérg
Amount10,000 kr.
No message
Hrafnhildur Kristinsdottir
Amount2,000 kr.
Fyrir Árna❤️
Hafdis Harðardóttir
Amount5,000 kr.
Gangi þér vel
Amount10,000 kr.
No message
Elsa Bessadóttir
Amount5,000 kr.
No message
Elly Ragnarsdottir
Amount15,000 kr.
No message
Sóri
Amount5,000 kr.
Frábært framtak
Hafdís Harðardóttir
Amount5,000 kr.
Gangi þér vel
Sanna A.
Amount5,000 kr.
You’re amazing! Also a little insane, but mainly just amazing!
❤️
Amount6,000 kr.
No message
Eva Rós Stefánsdóttir
Amount5,000 kr.
No message
Ragnar Jóhannesson
Amount2,000 kr.
Gangi þér vel
Amount2,000 kr.
No message
Amount1,000 kr.
No message
Júlíana
Amount2,000 kr.
Áfram Þóra!👏
Helga
Amount2,000 kr.
🥰
Emil G
Amount5,000 kr.
U got this!
Amount10,000 kr.
No message
Sóley Margrét Rafnsdóttir
Amount2,000 kr.
👊👊
Amount2,000 kr.
No message
Guðný Ásberg
Amount5,000 kr.
Áfram Natalía
Katrín Kristinsdóttir
Amount2,000 kr.
Vel gert elsku Natalía, mikilvægt málefni 🙏🏻💙🩷
Alexandra Bía
Amount2,000 kr.
Áfram Natalia og Sebastian❤️❤️
Paulina
Amount1,000 kr.
No message
Björgvin Þorgrímsson
Amount5,000 kr.
You can do it!
Amount2,000 kr.
No message
Amount10,000 kr.
No message
Elma Rún Þráinsdóttir
Amount2,000 kr.
No message
Svala
Amount2,000 kr.
No message
Helga Dóra H
Amount1,000 kr.
Held með þér
Friðrika Bóel
Amount5,000 kr.
No message
Amount2,000 kr.
No message
Amount5,000 kr.
No message
Dóra Hrund
Amount5,000 kr.
💪🏻💛
Berglind Júlíusdóttir
Amount2,000 kr.
Gangi þér vel Ada!
❤️❤️❤️
Amount10,000 kr.
May the force be with you 😎
Kristín Kjartans
Amount2,000 kr.
Áfram þú!!
Unnur Lilja Erlingsdóttir
Amount1,000 kr.
Held með þér 💪🏼
Amount5,000 kr.
No message
Amount5,000 kr.
No message
Þóra Guðjónsdóttir
Amount10,000 kr.
Getur allt sem þú ætlar þér 😘
Shane McClanahan
Amount10,000 kr.
Go solrun
Jóhanna Guðrún
Amount5,000 kr.
Go girl😉
Ingveldur Hera
Amount5,000 kr.
Svo stolt af þér, áfram þú 🥰
Þóra og Gunnar
Amount5,000 kr.
Þú massar þetta ❤️

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